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Hi.

Welcome to my blog.

My goal is to help provide EDS & Dysautonomia patients with resources to discuss with their healthcare team.

The Tale of a Zebra (EDS) and POTS
Dysautonomia and Ehler's Danlos Life
Homeopathic Trial & Error
May 28

May 28 Homeopathic Trial & Error

Spoonie Warrior
POTS - Tips/Tricks/Ideas, My Personal Journey, EDS - Tips/Tricks/Ideas, Patients
Guest Blog! Fibromyalgia & Radical Acceptance
May 25

May 25 Guest Blog! Fibromyalgia & Radical Acceptance

Penelope White
Guest Blogger, Patients

Guest Blogger! Penelope White shares her experience with Fibromyalgia and her journey to Radical Acceptance.

Meds & Moving to California
May 3

May 3 Meds & Moving to California

EDSZebraPOTS
My Personal Journey
Traveling pains
May 1

May 1 Traveling pains

EDSZebraPOTS
My Personal Journey

Update from October 2017 (Super super late! It’s May of 2018 now. OOPS!)

I MOVED!!
Oct 14

Oct 14 I MOVED!!

EDSZebraPOTS
My Personal Journey
Road Trip to San Diego
Aug 25

Aug 25 Road Trip to San Diego

EDSZebraPOTS
My Personal Journey
Frenulectomy, Road Trip, & Med Issues
Jul 28

Jul 28 Frenulectomy, Road Trip, & Med Issues

EDSZebraPOTS
My Personal Journey
Doctors, Medications, and $$$
Jun 15

Jun 15 Doctors, Medications, and $$$

EDSZebraPOTS
My Personal Journey
Future Appointments and a Medication Issue
May 10

May 10 Future Appointments and a Medication Issue

EDSZebraPOTS
My Personal Journey

Upcoming doctor's appointments (quite a few) and trying to create a medical plan of action.

Coexisting Conditions to Look into with Your Doctor
May 10

May 10 Coexisting Conditions to Look into with Your Doctor

EDSZebraPOTS
Patients

Potential coexisting conditions to discuss with your medical team.

Guest Blog - Spring Allergies
May 8

May 8 Guest Blog - Spring Allergies

Tammy Kosbab
Guest Blogger

Guest Blogger - Tammy Kosbab on Spring Allergies & MCAD

How to Make Your Invisible Disability a little More Visible
May 7

May 7 How to Make Your Invisible Disability a little More Visible

EDSZebraPOTS
Patients, POTS - Tips/Tricks/Ideas, EDS - Tips/Tricks/Ideas

Making the invisible a little more visible.

Next Steps
Apr 29

Apr 29 Next Steps

EDSZebraPOTS
My Personal Journey

The next steps after meeting with my neurology team.

POTS Awareness Images
Apr 22

Apr 22 POTS Awareness Images

EDSZebraPOTS
Patients

Images to help explain POTS

POTS Edition - Laughter is the best medicine, right?
Apr 19

Apr 19 POTS Edition - Laughter is the best medicine, right?

EDSZebraPOTS
Comic Relief

It's time for a good laugh :)

Pain Relief at Home
Apr 17

Apr 17 Pain Relief at Home

EDSZebraPOTS
Patients, EDS - Tips/Tricks/Ideas

Pain relief ideas for at home

Chronic Illness Dating: When is the right time to come out of the Medicine Cabinet?
Apr 16

Apr 16 Chronic Illness Dating: When is the right time to come out of the Medicine Cabinet?

EDSZebraPOTS
Patients, My Personal Journey

Things to keep in mind in the dating world.

Ehlers Danlos - Bedroom *Updated December 2019*
Apr 15

Apr 15 Ehlers Danlos - Bedroom *Updated December 2019*

EDSZebraPOTS
Patients, EDS - Tips/Tricks/Ideas

Tips for comfort in your bedroom

Ehlers Danlos Braces *Updated April 2021*
Apr 13

Apr 13 Ehlers Danlos Braces *Updated April 2021*

EDSZebraPOTS
Patients, EDS - Tips/Tricks/Ideas

A list of braces for EDS - I will update as I find more.

Fur Baby Love
Apr 12

Apr 12 Fur Baby Love

EDSZebraPOTS
My Personal Journey

My fur babies have helped me get through so much!

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