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Hi.

Welcome to my blog.

My goal is to help provide EDS & Dysautonomia patients with resources to discuss with their healthcare team.

The Tale of a Zebra (EDS) and POTS
Dysautonomia and Ehler's Danlos Life
Upcoming Specialist Appointment
Apr 11

Apr 11 Upcoming Specialist Appointment

EDSZebraPOTS
My Personal Journey

Before my appointment with my Neurology Specialist.

EDS Edition - Laughter is the best medicine, right?
Apr 9

Apr 9 EDS Edition - Laughter is the best medicine, right?

EDSZebraPOTS
Comic Relief

It's time for a good laugh :)

When Your Friends/Family Just Don't Get It.
Apr 8

Apr 8 When Your Friends/Family Just Don't Get It.

EDSZebraPOTS
Patients

Resources for explaining chronic illness to your friends and family.

I overdid it
Apr 5

Apr 5 I overdid it

EDSZebraPOTS
My Personal Journey

I attempted a 2 day conference (key word 'attempted').

"I miss my old life"
Apr 4

Apr 4 "I miss my old life"

EDSZebraPOTS
Patients, My Personal Journey

Daily struggles and helpful suggestions for dealing with the social implications of chronic illness.

Support Groups List
Apr 3

Apr 3 Support Groups List

EDSZebraPOTS
Support Groups, Patients

Resource - Find a local or online support group.

Battling the Summer Heat
Apr 2

Apr 2 Battling the Summer Heat

EDSZebraPOTS
Patients, POTS - Tips/Tricks/Ideas, EDS - Tips/Tricks/Ideas

Helpful hints for combatting the summer heat.

Salty Snacks
Mar 28

Mar 28 Salty Snacks

EDSZebraPOTS
Patients, POTS - Tips/Tricks/Ideas

A list of salty snacks 

Salty Drink Ideas
Mar 27

Mar 27 Salty Drink Ideas

EDSZebraPOTS
Patients, POTS - Tips/Tricks/Ideas

Different salty drink ideas with their cost, sodium, and potassium levels

 EDS/POTS Support Group – Madison Area
Mar 27

Mar 27 EDS/POTS Support Group – Madison Area

EDSZebraPOTS
Support Groups
EDS/POTS Support Group – Greater Milwaukee Area
Mar 27

Mar 27 EDS/POTS Support Group – Greater Milwaukee Area

EDSZebraPOTS
Support Groups

Milwaukee Area EDS/Dysautonomia Support Group

New Website
Mar 27

Mar 27 New Website

EDSZebraPOTS

I'm still learning how to navigate the controls of this site. Please bear with me.

Support Group Week
Mar 26

Mar 26 Support Group Week

Spoonie Warrior
My Personal Journey

This is how my first week of running 3 support groups went :)

My First Support Group Meeting
Mar 26

Mar 26 My First Support Group Meeting

Spoonie Warrior
My Personal Journey

My first ever support group meeting

Watching Patch Adams
Mar 23

Mar 23 Watching Patch Adams

EDSZebraPOTS
My Personal Journey

Reminding myself that I will make a difference for other patients despite my setbacks.

Functional Tips for EDS/POTS *Updated May 2019*
Mar 18

Mar 18 Functional Tips for EDS/POTS *Updated May 2019*

EDSZebraPOTS
Patients, EDS - Tips/Tricks/Ideas, POTS - Tips/Tricks/Ideas

EDS/POTS Tips and Tricks

Medical Backpack *Updated May 2019*
Mar 18

Mar 18 Medical Backpack *Updated May 2019*

EDSZebraPOTS
Patients, POTS - Tips/Tricks/Ideas, EDS - Tips/Tricks/Ideas

A list of everything I keep in my medical backpack (including helpful links)

The Journey (Journey Part 3)
Mar 18

Mar 18 The Journey (Journey Part 3)

EDSZebraPOTS
My Personal Journey

Part 3 of my Medical Journey

Tips & Tricks - Kitchen/Office
Feb 2

Feb 2 Tips & Tricks - Kitchen/Office

EDSZebraPOTS
Patients, EDS - Tips/Tricks/Ideas

Tips and tricks for your kitchen and home office

The Journey Continues (Journey Part 2)
Jan 14

Jan 14 The Journey Continues (Journey Part 2)

EDSZebraPOTS
My Personal Journey

Part 2 of my Medical Journey

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