Hi.

Welcome to my blog.

My goal is to help provide EDS & Dysautonomia patients with resources to discuss with their healthcare team.

Support Group Week

Support Group Week

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I started three support groups -

  • 1st group meets in my area on the 2nd and 4th Thursday of the month
  • 2nd group meets about 30 minutes north of me on the 2nd and 4th Saturday of the month
  • 3rd group meets on the 4th Sunday of the month about an hour and 15 minutes from me

It's the forth week of the month, so needless to say, it's been busy!  This week was the first meeting for each group. My Thursday group turned out to be me and one other person enjoying coffee together, talking about our medical histories, and figuring out what research I should do to reach more patients. The Saturday group was me and two other members. I had a structured outline for this one (for the first part) and then the discussion started on its own :) The final group was today and followed the same beginning structure and quickly moved to group discussion.

I hope the groups are helping people. I know I'm enjoying them and learning a lot from them. Next steps are to provide more information for others that have conditions like ours. I'll be working on different PDFs and posting about the resources I'm gathering.

New Website

New Website

My First Support Group Meeting

My First Support Group Meeting